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Where My Son Lives

I watch as my son's eyes glaze over and I Asperger's Syndrome is part of a sub
know that for a little while at least I group which is part of a much larger
have lost him to the splendor of his category called Autistic Spectrum
world. My son suffers from Asperger's Disorders or Pervasive Developmental
Syndrome and it has taken us as parents a Disorders (PDD). Asperger's Syndrome (or
long time to accept that there are Asperger's Disorder) is a developmental,
certain things that my son does that we neurological disorder characterized by
will never really understand. severe impairment in social development,
When he travels around the house doing obsessive traits causing repetitive
what the doctors call "stiming" he looks patterns of behavior and very narrow and
at us like we are the strange ones that focused interests. They are usually very
don't do this that we don not require clumsy and have awkward movements. Unlike
such activities in order to survive. with Autism, children with Asperger's
"Stiming" is self-stimulation, which can show no delays in the development of
be opening and closing the window blinds language skills. Once we actually knew
for extended periods of time, watching what was wrong with my son a whole new
the tap drip or carrying around a shoe. avenue of opportunity opened up for us.
In my son's case it is flicking a soft As a mother the first thing I did was
cloth right in front of his eyes, which research. I spent hours with my nose in a
is visual stimulation. Sometimes it calms book or staring at the computer screen.
him and other times it gets him all The one piece of hope that I found in
excited but it is as necessary to his almost all of my research was that with
existence as air is. When he is stiming treatment children with Asperger's can
he leaves our world and goes into his. grow up to have fulfilling lives as
I've asked him what makes his different adults. Of course the earlier they
and he says in his world he is popular, receive treatment the higher the rate of
understood and feels happy. It saddens me success but my son only started receiving
that this world cannot offer that to him. real treatment when he was 11 and we have
I knew that there was something wrong at still seen great improvement.
a very early age but it took me years to I know from personal experience that the
convince the doctors. I was just another frustration of trying to find out what is
mother over reacting to what was wrong with your child is at a level that
perfectly normal. As an infant he was only parents who have gone or are going
colic and it wasn't only at certain times through can understand. It seems like the
it was 24hrs a day. The first time I world is against you as doctors treat you
slept through the night was when I as nothing but paranoid parents looking
purchased a jolly jumper for him and he for a reason to excuse their bad
basically jumped himself to sleep. I parenting. Of course that is where the
curled up around the bottom of him and we blame will always be placed by
stayed there for 5 hrs. To this day others...that as parents it is YOUR
sleeping is still a big problem for him. fault. There is no blame when it comes to
As my son grew there was more and more Asperger's or any other PDD disorder.
strange behavior. He never played with There has been some research that shows a
toys or with other children for that possible genetic connection but that is
matter. He walked on his tiptoe never still not an excuse for blame. If I could
flat foot. He was always flapping his offer any advice it would be to never
hands and would spend long hours playing give up. If one doctor won't help you
with a pen that made a clicking noise. If find another and do research especially
he became overly agitated I would put on on-line. There is excellent advice,
high-heeled shoes and the clicking sound support and resources to help you help
of the heels on the floor would calm him. your child. Saying that you need to mourn
As long as he was awake he was either for your child probably sounds ridiculous
rocking or bouncing. We had to put his because you have not lost him or her. I
high chair up against a wall so he advise the mourning as a way of dealing
wouldn't tip it over he rocked so hard. with the fact that that perfect child you
Once my son reached the age of 4 his always dreamed of having who would be so
behavior turned aggressive and out of popular and a star athlete just is not
control. It was a nightmare of hospitals going to happen. That is not to say your
and doctors and he became a guinea pig child will not accomplish great things
for various medications. Over the course but it may not be in the way you had
of a few years he was diagnosed with hoped. Once you accept who your child is
various disorders such as Attention you will be much better equipped to help
Deficit Hyperactive Disorder (ADHD), him focus on all the special qualities he
tourette syndrome, obsessive compulsive has. It will never be easy but with
disorder and Non Verbal Learning treatment programs and a lot of love, the
Disability (NLD). Finally at the age of 9 life of an Asperger's child can be one of
he was diagnosed with Asperger's great joy and fulfillment for him and you
Syndrome. the parents.




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