Losing Friends May Happen When Raising a Child With Sensory Processing Disorder

My child got diagnosed with Sensory ProcessingScout campout, I realized how mean their boys were
Disorder when he was 5 years old. Before that time,to Jeremy! Jeremy told me that they told him they
doctors told me that he'd grow out of his screamingdidn't want to play with him. They didn't give a
and crying when I tried to dress him and that he wasreason, they just told him to go away.
just a picky kid who was slow to move and to listen.When we got home, I tried to put together a
Five years ago, doctors weren't as familiar with theHalloween party for us all and mentioned that
signs of Sensory issues, or the Autistic Spectrum,perhaps my friends could mention this to their sons
and they just classified my hyper son as ADHD.and that whatever I needed to do to get Jeremy in
Over the years, I've learned so many things thatline, I'd do. Their answer? "We need to talk".
work for my son. We keep the house low onAt first I told them I'd talk, and I shared with them
stimulation, with little TV, music or computers. I knowby email that I'm sure that Jeremy was hurt,
that he takes time to transition so we make sure hebecause I was hurt that they had stopped socializing
wakes up really early every day, which means he haswith us, and that shouldn't we learn how to deal with
to get to bed early every night. Because he takesour differences? And regardless, no one should be
ADHD medication to get through school, he oftenmean in spite of our challenges. If it were me, I'd go
can't sleep at night so in addition to our night timeright to the parent and tell him or her that their child
prayers, he gets a melatonin to help him sleep. Iwas saying inappropriate things, or I'd go right to the
know that if he doesn't sleep well, that morning willchild and share with them that saying hurtful things
be a disaster.aren't going to win friends and then demonstrate
I also know that Jeremy needs a lot of activityanother way of doing it. I would have shared with
which means that sports are a priority in our house. Ithem to come to me if Jeremy was saying anything
have spoken to the teachers and explained thator doing anything that wasn't nice as well.
while he has inattention, that ADHD is not the coreBut, nope, my friends have chosen to not socialize
to his issues, it's an underdeveloped system that iswith us unless they have to, and because of that,
still building. It's the body, not the brain that is theI'm now reevaluating whether I want to talk it
issue. Additionally, he has auditory processing disorderthrough or even hang with them at all. After all it was
so we're aware that he has to be told things athem who heard me share my frustration of trying
number of time and we have to get his attentionto figure my child out, and they knew how difficult
first before talking.my daily life was and were there as things got better
All of this awareness took trial and error andand better. And I never dreamed that they'd decide
thankfully, because we changed his diet, his defiancethat they'd stop seeing us because of it and can't
is mostly gone. That happened in a few short weeks,imagine that they think this was the right thing to do.
by getting the preservatives out, high fructose cornAnd perhaps if they would have talked with me first,
syrup out, and the vitamins into his system. Wethen I would have been a bit more open to hearing
stopped doing white bread and gave him healthyabout how frustrating it was from their end.
alternatives. The difference in his behavior was and isInstead, my husband and I have discussed that some
remarkable. He can now eat a bunch of candy orpeople just cut others off without saying anything
chips and he's off the wall within 15 minutes.about it, even if they're your so called best friends.
Imagine the complaining that we get from an 8 yearThey don't know what it's like to raise a child with a
old who wants to get high on candy like his peers.disability and they would rather not deal with it. And
We have to set limits and we discuss it thoroughly.even though I've told them I'll talk with them about
We let him have candy or sugar if there is nothingit, I feel like I've been kicked in the gut and I don't
planned but outdoor activity. Otherwise, we tell himeven want to be around them right now. Perhaps in
that he will have to live with his behavior and if hetime, I'll understand that they didn't know how to
can't control himself and if and when he goes a bitdiscuss this with me in the first place and that they
nuts while having a sugar high, which can be hyper ormay feel that the kids need to get older before they
annoyed and whiny or uncomfortable somehow. Theshould play together. But I'll never understand why a
result is never fun.person would not apologize for their child being rude
Imagine a child though who has mostly gottenor mean. It's just a different way of handling things I
through a lot of these issues. At age 8, he's able toguess.
mostly determine how to conduct himself and whenWe all grow in compassion when we go through trials
he doesn't, his mom is right there making sure heand challenges and make it out on the other side.
apologizes to the kids or to the parents orPerhaps I have had to lose our best friends
whomever. He is on ADHD medicine which helps histemporarily so I can be of service to another family
impulsivity and constant talking but there are dayswho will go through the same thing. It's not fun, but
when he still has to apologize. But, he doesn't keepperhaps its part of life when you're dealing with a
repeating these things over and over. He finally getschild who is a bit out of the box.
the message usually by us taking away play dates.I found this quote that I thought was a great line:
He changes his behavior immediately when he knowsA real friend is one who walks in when the rest of
he'll lose privileges.the world walks out."
So I guess I understand when I kept hearing our~ Walter Winchell
best friends slip when they were talking about theAnd it made me realize, perhaps they weren't really
evenings their families got together and noticeablyfriends who would be there through thick and thin.
we weren't invited. Over and over it happened thisThat was the most hurtful thing at all that I thought
summer and my husband and I explained it awaythey were real friends and instead they were just
that they're all on the same baseball team or all go tofriends out of convenience not commitment.
the same school. But then, last weekend at the Cub